Jenifer Estess (1963–2003)
Autore di Tales from the Bed: A Memoir
2 opere 194 membri 7 recensioni
Sull'Autore
Fonte dell'immagine: projectALS.org
Opere di Jenifer Estess
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Informazioni generali
- Nome canonico
- Estess, Jenifer
- Data di nascita
- 1963-02-17
- Data di morte
- 2003-12-16
- Sesso
- female
- Nazionalità
- USA
- Luogo di nascita
- Moline, Illinois, USA
- Luogo di residenza
- Moline, Illinois, USA
New York, New York, USA - Attività lavorative
- theatre producer
memoirist
Utenti
Recensioni
Tales from the Bed: On Living, Dying, and Having It… di Jenifer Estess
Emotional memoir about Jenifer Estess after her ALS diagnosis. She shares a special bond with her two sisters and together they form Project ALS to raise funds for researching a cure for ALS. Unfortunately, Jenifer dies before a cure is found. I wish she was a Christian then she would be assured of eternal life. Very sad story, especially since a special friend of mine has also been diagnosed with this horrible disease.
Segnalato
LilQuebe | 6 altre recensioni | Nov 20, 2020 | Very readable---but immediately, even with the tremendous work these three sisters did to get the A.L.S. organization they founded going----help comes with who-they-knew---especially Jenifer, in the celebrity field. Could they have done as much if it had been " just " three sisters? This is not a criticism---just a fact. When you need help, what makes it come? The expense of care for a person with A.L.S. are overwhelming--economically as well as emotionally. There was not a lot of detail about the actual costs except that you were certainly aware of them in terms of the types of experts and non-experts, as well as equipment, involved. To have this story told by the person with A.L.S. provided a lot but left me wanting lots more details.… (altro)
Segnalato
nyiper | 6 altre recensioni | Feb 28, 2016 | This is a book about Jenifer Estess' battling with ALS, a fatal disease which has know cure and no treatment.
I think Ms. Estess' was a very intelligent woman, fierce, determined and beyond sad that she befell the fate of ALS.
That being said, I did not think this book was very inspiring, funny, touching or anything else really. At no point in the book (which was transcribed the the author's sister, Valerie) did I feel like she was being honest about the suffering of ALS or giving a true-to-heart story about her personal struggles with it. This book came across as one big celebrity name-drop after another. And another. And another.
I get the picture, lady. Celebrities clearly loved to hang out at your bedside and keep you company in your lush private jets, luxurious vacations, designer clothes and all the other fancy things you couldn't stop talking about.
Take out all the fluff and there is an inspiring story. A woman and her sisters embarked to raise a company up from nothing and turn it into the foremost (in 2003) research company for ALS (entitled: Project A.L.S.). That part IS inspiring. There was no medicine ready to use on Jenifer before her passing but the change they have brought to the neuroscience studies is incredible. In the future, I believe many people will be saved directly because of their tenacity in assembling the team and project.
Now, the last chapter was ridiculous, in my opinion. It was obviously written 100% by her sister because it opened up on the morning she [Jenifer] passed away. Yet the chapter continues on in Jenifer's POV, describing the flying feeling of death and peering down into her sister's lives after crossing over. Ho-hum to that.… (altro)
I think Ms. Estess' was a very intelligent woman, fierce, determined and beyond sad that she befell the fate of ALS.
That being said, I did not think this book was very inspiring, funny, touching or anything else really. At no point in the book (which was transcribed the the author's sister, Valerie) did I feel like she was being honest about the suffering of ALS or giving a true-to-heart story about her personal struggles with it. This book came across as one big celebrity name-drop after another. And another. And another.
I get the picture, lady. Celebrities clearly loved to hang out at your bedside and keep you company in your lush private jets, luxurious vacations, designer clothes and all the other fancy things you couldn't stop talking about.
Take out all the fluff and there is an inspiring story. A woman and her sisters embarked to raise a company up from nothing and turn it into the foremost (in 2003) research company for ALS (entitled: Project A.L.S.). That part IS inspiring. There was no medicine ready to use on Jenifer before her passing but the change they have brought to the neuroscience studies is incredible. In the future, I believe many people will be saved directly because of their tenacity in assembling the team and project.
Now, the last chapter was ridiculous, in my opinion. It was obviously written 100% by her sister because it opened up on the morning she [Jenifer] passed away. Yet the chapter continues on in Jenifer's POV, describing the flying feeling of death and peering down into her sister's lives after crossing over. Ho-hum to that.… (altro)
Segnalato
tealightful | 6 altre recensioni | Sep 24, 2013 | Like Sex & the City for the terminally ill. I wasn't sure who she (they?) were trying to write this to, and she seemed to spend a lot more time name-dropping than, uh, lift-upping. The only reason I didn't give this book 2 stars is because she died and I feel bad.
Segnalato
damsorrow | 6 altre recensioni | Jun 11, 2009 | Potrebbero anche piacerti
Statistiche
- Opere
- 2
- Utenti
- 194
- Popolarità
- #112,877
- Voto
- ½ 3.7
- Recensioni
- 7
- ISBN
- 4