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Sto caricando le informazioni... The Boy Who Loved Too Much: A True Story of Pathological Friendliness (2017)di Jennifer Latson
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![]() Iscriviti per consentire a LibraryThing di scoprire se ti piacerà questo libro. Attualmente non vi sono conversazioni su questo libro. ![]() ![]() Read for book club. I had not even heard of Williams syndrome before this book, which was a very realistic (I think, speaking from the outside) portrayal of life bringing up a teenager with special needs. The researcher presented most chapters from Gayle's perspective, but in the third person, which took a bit of getting used to: this is a non-fiction book, but she was recreating scenes Gayle must have described to her. The science chapters were both beyond my level of understanding and, frankly, my interest, but I imagine they would have been excellent for those with more of a background in science. Can a person be too indiscriminately friendly? According to this book, a snapshot in time of one mother and her son, yes. Gayle's son Eli, 12 when the book begins, 14 when it ends, has a condition known as Williams Syndrome, in which 26-28 genes are missing. Eli thinks everyone in the world is his best friend. His mother knows otherwise, and as a result rarely lets Eli out of her sight. This story of Eli and Gayle is entwined with the science, history and genetics of Williams Syndrome. In addition to reducing social inhibitions and making its sufferers biologically incapable of distrusting other people, Williams Syndrome causes a plethora of other health issues, including gastrointestinal and serious cardiac problems. Because scientists are aware of the specific and relatively small number of genes involved in the causation of Williams Syndrome, they have been able to conduct important genetic research. Recommended, if the subject interests you. 3 stars I knew nothing about Williams syndrome until I read a brief review of Latson's book and decided to check out the work at our local library several years ago. The author skillfully weaves science and psychology into a compelling narrative that tells a story about a boy, his family and their challenges in navigating a rare developmental disorder that is best described as "pathological friendliness." Although the book's ending seemed incredibly abrupt for my tastes, it kept my interest from start to finish and provided intriguing insights. One benchmark for determining a book's rating involves me asking myself whether I've ever encountered similar works. Latson's book is both intriguing and unique. Williams syndrome is a rare disorder caused by the deletion of twenty-six genes from chromosome 7. People with this disorder have a distinctive appearance and intellectual disabilities alongside some extraordinary gifts, including remarkable friendliness and empathy towards others. Some even call it (rather glibly, I think) "the opposite of autism". Writer Jennifer Latson spent months with Eli D'Angelo, who has Williams syndrome, and his mother Gayle. The result is a book that blends scientific reportage with tales of the day-to-day life of a young man who has the syndrome. Eli has a lot of personal charm, but the more negative aspects of his disability, such as anxiety and poor impulse control, make it hard for him achieve his heart's desire and form meaningful relationships with others. Meanwhile, his mother struggles with the complexities of parenting her unusual son. This book is heartbreaking and uplifting at the same time. Highly recommended. nessuna recensione | aggiungi una recensione
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What would it be like to see everyone as a friend? Twelve-year-old Eli D'Angelo has a genetic disorder that obliterates social inhibitions, making him irrepressibly friendly, indiscriminately trusting, and unconditionally loving toward everyone he meets. It also makes him enormously vulnerable. Eli lacks the innate skepticism that will help his peers navigate adolescence more safely-and vastly more successfully. Journalist Jennifer Latson follows Eli over three critical years of his life as his mother, Gayle, must decide whether to shield Eli entirely from the world and its dangers or give him the freedom to find his own way and become his own person. By intertwining Eli and Gayle's story with the science and history of Williams syndrome, the book explores the genetic basis of behavior and the quirks of human nature. More than a case study of a rare disorder, however, The Boy Who Loved Too Much is a universal tale about the joys and struggles of raising a child, of growing up, and of being different. Non sono state trovate descrizioni di biblioteche |
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