Andrea J. Buchanan

A detailed memoir of illness, orphan illness, and the helplessness and hopelessness that come when your body is incapacitated, and doctors can’t figure out why. My favorite parts were the ones detailing CSF Leak (spontaneous intracranial hypotension—where fluid leaks from the spine and causes constant fluid shortage in the brain) is a rare disorder that occurs in only 1 out of every 20,000 people, and so it often goes undiagnosed and misdiagnosed for years while patients worsen, are accused of malingering, and the disease progresses, causing severe headache, confusion, cognitive impairment, dizziness, sensitivity to light and sound, and inability to be upright for more than a few minutes. This memoir is very detailed at times, and painful to read, but an accurate depiction. A great book for "Leakers" in all of its detail and the reminder that there are others out there experiencing the same thing.

Please excuse typos/name misspellings. Entered on screen reader.
… (altro)