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We're Not Broken: Changing the Autism Conversation (2021)

di Eric Garcia

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1413194,226 (3.82)1
Biography & Autobiography. Psychology. Nonfiction. HTML:"This book is a message from autistic people to their parents, friends, teachers, coworkers and doctors showing what life is like on the spectrum. It's also my love letter to autistic people. For too long, we have been forced to navigate a world where all the road signs are written in another language."
With a reporter's eye and an insider's perspective, Eric Garcia shows what it's like to be autistic across America.
Garcia began writing about autism because he was frustrated by the media's coverage of it; the myths that the disorder is caused by vaccines, the narrow portrayals of autistic people as white men working in Silicon Valley. His own life as an autistic person didn't look anything like that. He is Latino, a graduate of the University of North Carolina, and works as a journalist covering politics in Washington D.C. Garcia realized he needed to put into writing what so many autistic people have been saying for years; autism is a part of their identity, they don't need to be fixed.
In We're Not Broken, Garcia uses his own life as a springboard to discuss the social and policy gaps that exist in supporting those on the spectrum. From education to healthcare, he explores how autistic people wrestle with systems that were not built with them in mind. At the same time, he shares the experiences of all types of autistic people, from those with higher support needs, to autistic people of color, to those in the LGBTQ community. In doing so, Garcia gives his community a platform to articulate their own needs, rather than having others speak for them, which has been the standard for far too long.
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This is a very clear and informative book on autism spectrum disorder. It goes a little into the history, a little into the story of some of those with autism, a little into what it is to live with autism, and a little into what it means to be part of a diverse community and have autism. It doesn't sugar-coat the reality, nor does it castigate the disability. Overall it is very well presented. ( )
  Velmeran | Mar 31, 2024 |
Very good primer about autism and neurodivergence and how it intersects with every aspect of life. Well written and well organized. I appreciate how Garcia integrated personal experience into analysis and interviews without making the book solely a memoir. (Not that there’s anything wrong with that! Memoir is one of my very favorite genres.)

I recommend this especially for those newly diagnosed/discovered with autism as adults, and/or their friends and families.

Thank you to #NetGalley for providing an advance copy, with my apologies for taking so long to review.
  LizzK | Dec 8, 2023 |
Using examples from his own life and from persons he has interviewed, Garcia shows that neuro-diverse persons can be contributing & interactive members of society. There are no solutions here for overcoming the challenges of housing and companions that are necessary for persons with almost constant support needs. It does include a good example of one person who found a friend to be their companion, and of a couple whose support needs allow for being each other's support.
As a parent of an adult child with autism, I fall into the category of "people who try to control our lives", according to the author. The book pays little more than lip service to nonverbal persons (altho it is quite possible the author is much more accepting and involved in the full spectrum).
Just as Garcia's starting point, a lot of messages I received 20 years ago was "of course you would want to try anything/everything possible to help your child be able to live a full life", and while I had the good sense to avoid the more invasive and punitive procedures, I don't see what is wrong with nutritional supplements or dietary modifications to help some of the digestive issues that are often co-occurrant with autism. How does he suppose Baggs learned to use a communication board unless someone had made if available to them & presented it in a manner they could understand. One aspect Garcia is silent on is what medications or supplements or therapy do people with autism choose on their own initiative to use? What do they see as helping them feel better or accomplish goals? Or perhaps that is a pointless question, because his thesis is that they are all fine as they are.
This book is still good for helping neurotypical people to expand their acceptance, and just maybe, someday, decide they can be a friend with someone who is not like them. ( )
  juniperSun | Dec 1, 2023 |
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For Connie and Delfina
Your love sustains me
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At Hyde Park Prime Steakhouse near Heinz Field, where the Pittsburgh Steelers play, the dim lighting, hors d'oevres, and staffers wearing campaign buttons corralling people to sign petitions all indicate one thing: There is a political event taking place.
Introduction: This story starts in Des Moines back in 2017.
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Many parents of autistic people with higher support needs have argued that their children need environments that are more restrictive...[to]ensure their children's well-being and security. Conversely, many autistic self-advocates see being a part of a community...as being part of the social fabric. It means our fate and our health are tied to others and we can't be relegated to seclusion.[p.88]
Any one thing I'm helping her with, it's not the task itself...It's all the little things that go into it...prompt her to do basic executive-functioning tasks, like showering or making dinner, which are especially difficult ...at night.(p.90)
Supported decision-making allows people to make their own decisions about their health care, residence, and finances but with the assistance of people they designate as their supporters. Still, at the end of the day, it is disabled people who have the final say. (p.104)
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Biography & Autobiography. Psychology. Nonfiction. HTML:"This book is a message from autistic people to their parents, friends, teachers, coworkers and doctors showing what life is like on the spectrum. It's also my love letter to autistic people. For too long, we have been forced to navigate a world where all the road signs are written in another language."
With a reporter's eye and an insider's perspective, Eric Garcia shows what it's like to be autistic across America.
Garcia began writing about autism because he was frustrated by the media's coverage of it; the myths that the disorder is caused by vaccines, the narrow portrayals of autistic people as white men working in Silicon Valley. His own life as an autistic person didn't look anything like that. He is Latino, a graduate of the University of North Carolina, and works as a journalist covering politics in Washington D.C. Garcia realized he needed to put into writing what so many autistic people have been saying for years; autism is a part of their identity, they don't need to be fixed.
In We're Not Broken, Garcia uses his own life as a springboard to discuss the social and policy gaps that exist in supporting those on the spectrum. From education to healthcare, he explores how autistic people wrestle with systems that were not built with them in mind. At the same time, he shares the experiences of all types of autistic people, from those with higher support needs, to autistic people of color, to those in the LGBTQ community. In doing so, Garcia gives his community a platform to articulate their own needs, rather than having others speak for them, which has been the standard for far too long.

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