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Sto caricando le informazioni... The Invisible Kingdom: Reimagining Chronic Illnessdi Meghan O'Rourke
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Iscriviti per consentire a LibraryThing di scoprire se ti piacerà questo libro. Attualmente non vi sono conversazioni su questo libro. As a woman who has sought out doctors for a range of symptoms, only to be told that my levels are normal and I just have anxiety - I relate to this book more than I'd like and appreciate its existence. The author explores chronic illness on a macro and micro level and highlights how difficult it is to be seen, heard and truly understood as a person with hard-to-identify auto-immune disease(s). She stresses how important is it for the medical and scientific community to reevaluate how we view the individual when it comes to healthcare, looking at the person as a whole -- rather than a collection of separate organs or body systems -- and considering the totality of the condition. This book doesn't give any answers but rather points out how hard finding answers can be. I'd highly recommend this book to anyone whose life is impacted by an auto-immune disease or chronic illness. Meghan O’ Rourke’s The Invisible Kingdom: Reimagining Chronic Illness was a National Book Award Finalist. This book presented the grueling hardships of the author’s struggle with the devastating illnesses of autoimmune diseases. Her struggles began in earnest as a young woman at university and persisted later in her life. Eventually, Meghan was able to find suitable help after visiting numerous specialists. During these encounters she was upset by the lack of knowledge concerning autoimmune diseases, physicians’ inability to make a diagnosis, and hearing that sufferers of such an illness must have a psychological problem. After years of trials and errors she was diagnosed as having Lyme disease. Meghan received a treatment of antibiotics that helped. Yet, she continued to suffer with bodily pains and brain fog, but at times she felt better. Well, enough, to make trips, teach classes, and be able to work out. It was after having a fecal transfer in England she got a boost. Meghan soon became pregnant and gave birth to a son. Caring for a new-born child, she was also faced with an ailing father. With her husband Jim and child, her dad moved into their home in Brooklyn. Her father who was suffering from lymphoma cancer got well enough and moved back to Connecticut. But these experiences were a further strain on her ailing body. With other health setbacks, and times of feeling well, Meghan was pregnant again, and gave birth to another child. The book concluded with the author feeling rather conflicted. She wrote that she did not want to give a false sense of the meaning of her suffering. As she put it, at times she felt lousy, and sometimes better. But the illness itself robbed her of many precious moments she missed as a young woman because of her health. She did not even know for sure if she had Lyme disease, in addition to several other autoimmune diseases. However, she was presently feeling better, but has continued living with chronic disease with her family. nessuna recensione | aggiungi una recensione
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"A landmark exploration of one of the most consequential and mysterious issues of our time: the rise of chronic illness and autoimmune diseases A silent epidemic of chronic illnesses afflicts tens of millions of Americans: these are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O'Rourke delivers a revelatory investigation into this elusive category of "invisible" illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVIDynthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, O'Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color. Blending lyricism and erudition, candor and empathy, O'Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health"-- Non sono state trovate descrizioni di biblioteche |
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Google Books — Sto caricando le informazioni... GeneriSistema Decimale Melvil (DDC)616.044Technology Medicine and health Diseases Pathology; Diseases; Treatment Genetic and hereditary diseases Chronic ConditionClassificazione LCVotoMedia:
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One thing I noticed that O'Rourke did not do in her travels was meet with other chronic disease sufferers, although she does quote some she reads about online.
I thought I would really like this book, but I grew tired of the self-absorbed nature of the narrative. Still, I recommend it to those with chronic diseases. ( )