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Hidden Valley Road: Inside the Mind of an American Family

di Robert Kolker

UtentiRecensioniPopolaritàMedia votiCitazioni
1,5048912,037 (4.16)102
"Don and Mimi Galvin seemed to be living the American dream. After World War II, Don's work with the Air Force brought them to Colorado, where their twelve children perfectly spanned the baby boom: the oldest born in 1945, the youngest in 1965. In those years, there was an established script for a family like the Galvins--aspiration, hard work, upward mobility, domestic harmony--and they worked hard to play their parts. But behind the scenes was a different story: psychological breakdown, sudden shocking violence, hidden abuse. By the mid-1970s, six of the ten Galvin boys, one after the other, were diagnosed as schizophrenic. How could all this happen to one family? What took place inside the house on Hidden Valley Road was so extraordinary that the Galvins became one of the first families to be studied by the National Institutes of Mental Health. Their story offers a shadow history of the science of schizophrenia, from the era of institutionalization, lobotomy, and the schizophrenogenic mother, to the search for genetic markers for the disease, always amidst profound disagreements about the nature of the illness itself. And unbeknownst to the Galvins, samples of their DNA informed decades of genetic research that continues today, offering paths to treatment, prediction, and even eradication of the disease for future generations. With clarity and compassion, bestselling and award-winning author Robert Kolker uncovers one family's unforgettable legacy of suffering, love and hope"--… (altro)
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I listened to this as an audiobook. Some of it was so horrifying that I had to stop for a while and process what I had just heard. I can't imagine living in a house like the Galvins'. While I have compassion for the six brothers who suffered from schizophrenia, I cannot imagine how the other children survived. Admirably, Mimi, their mother, and now Lindsey, their sister never gave up on them. It teaches you about being "your brother's keeper". The research into schizophrenia has been enriched through studying this family. ( )
  Chrissylou62 | Apr 11, 2024 |
It’s a tough book to read, but the story is truly fascinating and the author has done an amazing job ( )
  corliss12000 | Mar 16, 2024 |
Don and Mimi seemed to have the perfect, if unusually large, family. He was military, but liberal-minded. She was a supporter of the arts and active in the community despite having 12 children in 20 years. Good in school, athletic, musically inclined, the ten boys and two girls seemed cut from the All-American mold. Then one after another, six of the boys would suffer spectacular breakdowns and eventually be diagnosed with schizophrenia. At first, Don and Mimi tried to gloss over the violence and eccentricities that tainted their middle-class bubble. But soon, tragedy would make that impossible.

Interspersed with chapters about different members of the family, are chapters about the history of schizophrenia, it's diagnosis and treatment, and the researchers who tried to find the genetic markers and better ways to treat or prevent the disease. While researching the book, the author interviewed, not only all the living members of the family, but the doctors, researchers, and therapists who worked with the family or with their DNA. The result is a family biography put into context with the medical history. For me, this saved the book from being voyeuristic. I was glad to know that the entire family consented to having their very personal story told. I thought it was well-written and balanced, addressing many of the social issues surrounding mental illness with objective compassion. ( )
1 vota labfs39 | Jan 29, 2024 |
Carefully documented, compassionate, and absorbing account of a family of 12 children growing up in Colorado mid 20th c. Of the 10 boys of Don and Mimi Galvin, 6 are diagnosed with schizophrenia or related psychoses as they become late teens. Their lives become dominated by violence and abuse. The author interweaves a history of schizophrenia treatment and controversy with the Galvin's story in an unforgettable narrative of family crises, love, and pain. ( )
  GigiB50 | Dec 18, 2023 |
4.5 stars

My favorite nonfiction read of the year, so far!

I learned more about schizophrenia and the search for a cause, treatment, or cure, which was really interesting.

The Galvin family was incredibly dysfunctional, even apart from the mental illness, which was sad. There is a lot of sexual abuse recorded.

Note: There's some profanity, and a brief reference to evolutionary theory as fact. The sexual abuse of children is referenced very frequently, and was sometimes a bit too detailed, in my opinion. ( )
1 vota RachelRachelRachel | Nov 21, 2023 |
Kolker’s telling of the Galvin trials is at once deeply compassionate and chilling. ... Interwoven with the harrowing familial story is the history of how the science on schizophrenia has fitfully evolved, from the eras of institutionalization and shock therapy, to the profound disagreements about the cause and origins of the illness, to the search for genetic markers for the disease.
aggiunto da Lemeritus | modificaWashington Post, Karen Iris Tucker (sito a pagamento) (Apr 9, 2020)
 
Kolker carefully reconstructs the story of the household falling into bedlam as the strong, athletic brothers warred with their demons and one another in flights of violent rage, each one slipping further away. ... Kolker is a restrained and unshowy writer who is able to effectively set a mood. As the walls begin closing in for the Galvins, he subtly recreates their feeling of claustrophobia, erasing the outside world that has offered so little help.
aggiunto da Lemeritus | modificaThe New York Times, Sam Dolnick (sito a pagamento) (Apr 3, 2020)
 
Hidden Valley Road blends two stories in alternating chapters. The first is about the overwhelmed Galvin parents, Don and Mimi, and how raising a boisterous Catholic family of 10 sons from the 1950s to the ’70s may have allowed mental illness to hide in plain sight. ... The second story in Hidden Valley Road details the thankless psychiatric research that has gone into defining schizophrenia and establishing treatments. ... Kolker is a compassionate storyteller who underscores how inadequate medical treatment and an overreliance on “tough love” and incarceration underpin so much of the trauma this family experienced.
aggiunto da Lemeritus | modificaBookPage, Jessica Wakeman (Apr 1, 2020)
 
Best-selling, award-winning journalist Kolker (Lost Girls, 2013) takes a bracing look at the history of the diagnosis and treatment of schizophrenia by exploring the staggering tragedies of the Galvin family. ... he weaves the larger history of schizophrenia research and how the family eventually came to the attention of scientists striving to find a cure. Kolker tackles this extraordinarily complex story so brilliantly and effectively that readers will be swept away. An exceptional, unforgettable, and significant work that must not be missed.
aggiunto da Lemeritus | modificaBooklist, Colleen Mondor (Feb 15, 2020)
 
Journalist Kolker (Lost Girls) delivers a powerful look at schizophrenia and the quest to understand it. He focuses on a much-studied case: that of Colorado couple Don and Mimi Galvin’s 12 children, born between 1945 and 1965, six of whom were diagnosed with the illness. ... This is a haunting and memorable look at the impact of mental illness on multiple generations.
aggiunto da Lemeritus | modificaPublishers Weekly (Feb 4, 2020)
 
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The clearest way that you can show endurance is by sticking with a family. -Anne Tyler
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For Judy and Jon
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Prologue: A brother and sister walk out of their house together, through the patio door that opens out from the family kitchen and into their backyard.
Chapter 1: Every so often, in the middle of doing yet another thing she'd never imagined doing, Mimi Galvin would pause and take a breath and consider what, exactly, had brought her to that moment.
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For a family, schizophrenia is, primarily, a felt experience, as if the foundation of the family is permanently tilted in the direction of the sick family member.
But one thing seemed true: If they admitted Donald to anything resembling a mental hospital, the only certainties were shame and disgrace, and the end of Donald’s college education, and the tainting of Don’s career, and a stain on the family’s position in the community, and finally the end of the chance for their other eleven children to have respectable, normal lives.
...schizophrenia itself remained ragingly mysterious, and the drugs themselves could be physically damaging? The drugs made some patients obese, others stiff and ungainly, others practically catatonic—this from drugs that had been hailed as miracles. For the chronically mentally ill, success had been defined down to a point where it was starting to look a lot like failure. The only real, unambiguous beneficiary of drugs, of course, were pharmaceutical companies—all of which were still developing variations of the same original drug, Thorazine, that had been developed back in the 1950s. Then again, their very efficacy had seemed to stifle innovation. Why was it that every new drug brought to market had been either a version of neuroleptics like Thorazine or atypical neuroleptics like clozapine—with no disrupting third class of drug to spur forward progress?
“One of the things that has characterized psychiatry research forever is the old saying of, ‘Looking for the lost keys where the light is.’ Everything has been, ‘Well, we have this tool. We have a hammer, so we’re going to look for nails.’ And we would find things, because this is the nature of phenomenology—you find things.” Whether they were promising leads or red herrings, no one knew for sure.
The schizophrenia researcher Rue L. Cromwell described this dilemma in the 1970s: “Like riding the merry-go-round, one chooses his horse. One can make believe his horse leads the rest. Then when a particular ride is finished, one must step off only to observe that the horse has really gone nowhere. Yet, it has been a thrilling experience. There may even be the yen to go again.”
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"Don and Mimi Galvin seemed to be living the American dream. After World War II, Don's work with the Air Force brought them to Colorado, where their twelve children perfectly spanned the baby boom: the oldest born in 1945, the youngest in 1965. In those years, there was an established script for a family like the Galvins--aspiration, hard work, upward mobility, domestic harmony--and they worked hard to play their parts. But behind the scenes was a different story: psychological breakdown, sudden shocking violence, hidden abuse. By the mid-1970s, six of the ten Galvin boys, one after the other, were diagnosed as schizophrenic. How could all this happen to one family? What took place inside the house on Hidden Valley Road was so extraordinary that the Galvins became one of the first families to be studied by the National Institutes of Mental Health. Their story offers a shadow history of the science of schizophrenia, from the era of institutionalization, lobotomy, and the schizophrenogenic mother, to the search for genetic markers for the disease, always amidst profound disagreements about the nature of the illness itself. And unbeknownst to the Galvins, samples of their DNA informed decades of genetic research that continues today, offering paths to treatment, prediction, and even eradication of the disease for future generations. With clarity and compassion, bestselling and award-winning author Robert Kolker uncovers one family's unforgettable legacy of suffering, love and hope"--

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