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Sto caricando le informazioni... Believe me : my battle with the invisible disability of Lyme disease (edizione 2017)di Yolanda Hadid, Michele Bender
Informazioni sull'operaBelieve Me: My Battle with the Invisible Disability of Lyme Disease di Yolanda Hadid
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"In early 2011, Yolanda was struck by mysterious symptoms including brain fog, severe exhaustion, migraines and more. Over the months and years that followed, she went from being an outspoken, multi-tasking, hands-on mother of three, reality TV star, and social butterfly, to a woman who spent most of her time in bed. Yolanda was turned inside out by some of the country's top hospitals and doctors, but due to the lack of definitive diagnostic testing, she landed in a dark maze of conflicting medical opinions, where many were quick to treat her symptoms but could never provide clear answers to their possible causes. In this moving, behind the scenes memoir, Yolanda Hadid opens up in a way she has never been able to in the media before. Suffering from late stage Lyme, a disease that is an undeniable epidemic and more debilitating than anyone realizes, Yolanda had to fight with everything she had to hold onto her life. While her struggle was lived publicly, it impacted her privately in every aspect of her existence, affecting her family, friends and professional prospects. Her perfect marriage became strained and led to divorce. It was the strong bond with her children, Gigi, Bella and Anwar, that provided her greatest motivation to fight through the darkest days of her life. Hers is an emotional narrative and all-important read for anyone unseated by an unexpected catastrophe. With candor, authenticity and an unwavering inner strength, Yolanda reveals intimate details of her journey crisscrossing the world to find answers for herself and two of her children who suffer from Lyme and shares her tireless research into eastern and western medicine. Believe Me is an inspiring lesson in the importance of having courage and hope, even in those moments when you think you can't go on"--Inside dust jacket. Non sono state trovate descrizioni di biblioteche |
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 Google Books — Sto caricando le informazioni...GeneriSistema Decimale Melvil (DDC)616.9Technology Medicine and health Diseases Other diseasesClassificazione LCVotoMedia: (3.25)
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1
"In the first months and years of my illness, I'd feel so guilty and inadequate for not being who I thought I was supposed to be." p 1
"Resting for a week to [work] for a few hours and having to recover afterward is my new normal, and, although it's hard, I have to accept it." p 90
I've seen some reviewers complaining about how Hadid just goes on and on about her sickness and all her various attempts at healing, and how they were sick of hearing about it.... yet, that IS life with Lyme. And that is the clear focus of the book, not her Real Housewives of Beverly Hills fame. (I didn't even realize Hadid was a "Real Housewife" until reading the book.)
"'When I try to talk, the words are floating out there somewhere, but I can't nail them,' I say.... 'Can you elaborate?' Dr. Piro asks. Of course, I can't elaborate. My problem is trying to find the right words!" p 24
I can't say that I support all of Hadid's "therapies," but I do understand what it's like to be desperate and willing to try practically anything. I think she tried to do too many things at once, though, and obviously didn't rest enough, which likely only contributed to her symptoms. That said, every case of Lyme is unique, and we all respond differently to different treatments.
"Lyme is six times more prevalent than HIV/AIDS was in the early 1980s, but the public awareness about it is virtually nonexistent.... The government promotes outdated testing and treatment guidelines and doesn't acknowledge that chronic Lyme exists." p 73
I also felt that Hadid came across as very down-to-earth in some parts - I definitely could track her thought processes, which I appreciated. However, even though she says she wants to find an affordable cure for all and she wants to help people with Lyme, at the end of the day, she spent I don't even know how many tens (hundreds?) of thousands of dollars on various treatments that the rest of us could never afford.... it seemed inconsistent.
However, this is her story and helpful for what it is. Because I also have Lyme, I could relate to a lot of the symptoms and the frustrating attitudes of the people around her that she had to endure.
"Determined to figure out what is wrong with me, I continue to go to different doctors but their basic diagnostic testing shows absolutely nothing. No answers. It's mind-boggling because I know something is really wrong as I have experienced declining brain function and am now starting to lose the ability to be social." p 29
"Although I'm starting to feel better, I use the word 'better' loosely, very loosely..." p 74
I do think the book lost some momentum in the last several chapters and wish the entire book had been better edited (the typos drove me crazy). (